Guillaume NICOLAS, 43 years old, living in Paris. Patient with Severe Combined Immune Deficiency (SCID) diagnosed at birth and received allogeneic hematopoietic cell transplantation at the age of 1 month, now treated with immunoglobulins. Father of 2 children 9 and 12 years old. Director of an international solidarity volunteer NGO. Former director and president of the IRIS association in France from 2009 to 2013.